On 17th January, Kwasi led a Westminster Hall debate on Sudden Unexplained Death in Childhood (SUDC). SUDC is the sudden and unexpected death of a child between 1 and 18 years of age, which remains unexplained after thorough investigation. It is the 4th leading category of death in England and Wales for children aged 1-4 years. However, there are currently no national scientific studies aimed at understanding why so many seemingly healthy children are dying without explanation. There is limited public awareness and no consistent medical education on SUDC.
Kwasi was honoured to give his first speech for some years as a backbencher on such an incredibly important issue, and one that has received far too little attention. Indeed, this was the first time that SUDC had been debated in Parliament. It was a very moving debate, with thoughtful and heartfelt contributions from members across the House.
As Kwasi said in his conclusion to the debate, “In many years in Parliament, both on the Front Bench and on the Back Benches, I have debated many issues of national importance, but I do not think that any of the issues I have ever spoken about has had such emotional impact on the people affected. I was particularly struck by the concordant note—the note of agreement—from Members of all parties. […]
Undoubtedly, research is the key element. We heard that there are something like 13,000 papers on SIDS, by contrast with 50 on SUDC. That balance has to shift somewhat if we are to get improved outcomes on SUDC. Clearly, public awareness has to be a big part of getting better results. Hon. Members have mentioned the NHS website, and I feel very strongly that it should be improved to incorporate many of the things we have discussed today.
Finally, it is really important that we continue to revisit this issue. On many occasions, I have had debates here in Westminster Hall or in the main Chamber where we have said lots of warm words, but we have had very little in the shape of follow-through. On an issue of this kind, which is so important and has touched everyone emotionally, we have to be able to follow through. I urge the Minister to meet Nikki, other families and people involved in SUDC UK’s vital work, so that we can have a dialogue and achieve much better outcomes than we are currently seeing today.”
Kwasi would like to thank his constituents, Julia and Christian Rogers, for bringing this important issue to his attention; SUDC UK for their vital work in raising awareness and supporting families; and all those who reached out to share their experiences of this tragic phenomenon.
You can read more about the debate and the Minister’s response here.